Just looking for a little advice/support.?

I am a 19 yr old female, when i was 14 i was prescribed 50mg of zoloft for OCD (obsessive compulsive disorder) and depression, i also have an extremely rare, almost unheard of bleeding disorder called Glannzmann's Thrombastinia, which is a platelet disfunction (unlike hemophiliacs i have plenty of platelets, the ones my body makes are just retarded). Over the past 7 months or so i have been having a horrible time. One day i was sitting at my computer and i started to feel a little strange. I ignored it but apparently i looked a little off because my mother asked me if i needed to go to the ER. I said no i dont think so i dont feel that bad. So i went back to looking online, then all of a sudden i felt like i couldnt breathe, my chest felt like someone dropped an anvil on it, my entire body was numb, everything was blurry, and i thought i was dying. The drive to the ER seemed like an hour even though it was less then 5 mins away. My mother thought i was having an allergic reaction to an antibiotic i was on. Because she felt similar when she went into anaphlyatic (misspelled) shock over 20 years earlier from barbiturates given during a medical procedure. I busted in the ER door and told them what was wrong and they said ok you are having a panic attack...i said WTF is that? They examined me and everything seemed fine. They gave me Ativan (anti anxiety tranquilizer thingy) and sent me on my way home. Over the next few months i made well over 40 ER visits, each time feeling like i was dying, my lungs actually HURTING, and every time i was fine. I went to mental inpatient facilities 2 times before i tried to come off of my zoloft thinking maybe that was the problem. I went off of it cold turkey because my phychaitrist said it would be ok.....that is NOT true, i went through horrible withdraw, hot flashes, electric shock feelings in my head, being terrified, suicidal, so i was put into a psyche ward for that also. That was the last time i went, because after 40 ER visits and 3 inpatient psyche wards i was tired of ppl thinking i was crazy. So i have sucked it up for the past 2 weeks. I feel tired constantly, scared often, blurry vision, painful breathing, feeling like im walking on spring boards, all sorts of good stuff. But i know this is not something i am creating in my head. Something is wrong and they havent figured it out. Tomorrow i see a neurologist. They already checked me for Lupus since my mom has it and my symptoms were associated with that sort of disorder. i had a positive ANA but nothing else. They had me on benzos for 6 months, Ativan and valium, but they didnt work, i was calm but my symptoms persisted. I am NOT a medicine basher, Ativan and Valium both worked for calming me down, but they certainly arnt pills that doctors should just throw at you since they dont know what else to do. Now that i know i am not going to die from this (at least not right this second) i have been home and not in and out of the hospital. I feel horrible for my family. When i went into the hospital the last time they put me back on zoloft. Zoloft has worked for my depression and OCD for the past 5 years so I dont think it is the problem. Has anyone else had these problems? and been through the same thing? Any advice or words of wisdom?